There is no treatment for Tay-Sachs disease. Affected children are kept comfortable and are provided good nutrition. They may receive medication for their seizures. Eventually, all affected children must be fed through a gastrostomy tube.
All medications have side effects, including allergic reactions. There are no other significant side effects to treatments for Tay-Sachs disease.
Most children with Tay-Sachs disease die between the ages of 2 and 4 years.
There is no useful way to monitor Tay-Sachs disease. Its progress can be documented by observation, but not changed.